SMA

There is no “right way” to live with a disease like SMA. Every person’s experience is different, and it’s every person’s right to decide what SMA means for them.

Spinal Muscular Atrophy (SMA) is a rare genetic disorder that affects motor neurons, leading to progressive muscle weakness. Thanks to recent advances, new treatments now offer improved quality of life and motor abilities, especially when diagnosed early. Every family deserves information, support, and guidance throughout their care choices.